Today Jayden is off of the vent and on the C-Pap with oxygen rate at 100 percent but is on it ontill 5 clock but they will lower the oxygen rate after that with he is still doing well on it right now he is his sats are staying above 80 which is very good. They also weaned him on some of his sedation medicine today so he we be more of awake. He had a x-ray today to make sure there was not no fluid around his lungs after they pulled the vent.
Jayden is doing good and getting better everyday. Thanks for all of the prayers and support everyone has giving us.
A Special Baby Boy journey with HLHS
Team Jayden Chase
Jayden Chase Taylor
Jayden Chase Taylor was born on Jan 21,2010 and they thought he had a heart murmur so they had him sent to WVU childrens hospital in Morgantown where they found out he had HLHS. HLHS is hypoplastic left heart syndrome is a rare congential heart defect in which the left side is small or underdeveloped. An infant borning with HLHS will not live without the 3 parts of open heart surgery. The syndrome is one of the top three abnormaities to cause problems in newborns. HLHS occurs slightly more often in boys then girls. Jayden was admitted to the NICU ontill the schedules his series of open heart surgery. Jayden was a wek old when Dr. Gus done his first open heart surgery and it was called the Norwood procedure. In this prodcedure the right venticle is used to pump blood into the circulation. The right ventricle is no longer directly pumping blood to the lungs, a shunt is made directly from the right ventricle to the pulmonary circulation. The narrow aorta is enlarged using patch to improve blood flow to the body. Jayden is a very fragile baby and he has a feeding tube because he has a left paralysis vocal cord and it burns all of heart babys calories to suck a bottle. Jayden had is second series of open heart surgery when he was 2 1/2 months. It called the Bi-Directional Glenn prodecure or Hemi-Fontan. In this operation the superior vena cava is ligated from the heart and connected to the pulmonary circulation. During this time may improve quaility of life as the heart dosen't have to work as hard. The third series of open heart surgery will be around 18 months to 3 years and this one is called the Fontan procedure which completes the repair of HLHS. The surgery goal is to seperate the red and blue blood, have the blue blood enter the lungs directly, have the heart as the pump of oxygen rich blood. The three stage Norwood procedure only increase the life of the heart as HLHS cannot be cured. Jayden may need a heart transplant at some point in his lifetime. After his second surgery Jayden is not a fragile baby. Jayden is a very special baby and he is very strong. He is just amazing for what he has been though. Thanks for all the prayers Mommy, Daddy, Katilynn, and Kaleb Love you Jayden
1 comment:
Jayden and Family you guys are so strong. He is a handsome little guy.I will cont. to keep you guys in my prayers:) Keep fighting little man.You have so manny people pulling for you.Love you guys Barb.
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