April 30,2010

Jayden is doing good. He is off all of his IV sedation medicine. Jayden is on 50% of blended oxygen and they are trying to get him off of it the next two days and on to room air and he is doing very good on 50% oxygen. He is still being pacing because Dr.Gus didnt like where his heart rate was sitting so he hook up the pacer. Tomorrow or the next day they're going to add more calories to Jaydens formula so he can get some more calories. We are so please as how Jayden is doing.


Keep Jayden in ur prayers and thanks for all of the prayers.

Eric, Jessica, Katilynn, and Kaleb

April 25, 2010

Today Jayden is doing good he is on the nasal canula and he has been on it for a couple of days. He is doing very good on it so far. Jayden is coming down on his sedation medicine slowing but that is so he want have no withdrawl from them. They started him back on his lasix drips. Everything is still the same nothing has really change and hopefully he keeps on getting better and nothing happen from know ontill time for him to go home.

Thanks for all of the prayers for Jayden and his family.

Jayden on C-PAP

Jayden is back on the C-Pap because when they done his blood gas his o2 level was up and plus he was working to hard to breath. Jayden is being put on the nasal canula for 4 1/2 hours a day so he can get use to it. His sedation medicine was lower again today. Yesterday Jaydens stiches where tooking out and he cryed when they done it. It was so good to hear him cry again after all that he has been though in the couple of weeks.

The doctors are saying between 3 weeks to a month before he can come home again becuase he his taking step by step to get better and that is what everybody is wanting him to do. His blood pressure medicine was lower because his pressure are where they want it to be. Jaydens lasix drops was stop yesterday and he is back to getting them every 8 hours though his G-Tube.

Hopefully in the next couple of weeks he will be off of all his sedation medicine if nothing go wrong in between the time. Thanks for all of the prayers for Jayden.

April 21,2010

Today Jayden is doing good. He is off the c-pap and on nasal canula, start back on feeds at 1cc per hour. Some of his sedation medicine was lower, milirone was also lower. Jayden was took off the pacer because he is holding his heart rate to where they want it to be.

Jayden is 3 months old today and he getting better everyday and that is what we like to see. Thanks to everyone for praying for him.

April 19,2010

Today Jayden is off of the vent and on the C-Pap with oxygen rate at 100 percent but is on it ontill 5 clock but they will lower the oxygen rate after that with he is still doing well on it right now he is his sats are staying above 80 which is very good. They also weaned him on some of his sedation medicine today so he we be more of awake. He had a x-ray today to make sure there was not no fluid around his lungs after they pulled the vent.

Jayden is doing good and getting better everyday. Thanks for all of the prayers and support everyone has giving us.

April 17,2010

It has been week seen Jayden had his Glenn done and he is doing better. They put they vent on volume control setting and that to see if he can breath by his self and he doing good with that. Jayden is strong and he will get through this and hopefully get to come home and stay more then 12hrs this time. Thinks to everyone that has been praying for him and keep him in ur prays cause that helps alot to us.

April 11,2010

Jayden is doing better just had a little high blood pressure. They gave him medicine to low it. Jayden was weaned down on the vent today to 65% and he is taking that very well which is a good thing. The puffiness in his face has went down he can open one of his eyes just a little. The doctor put him on two different medicine to make him pee so he can get the puffiness out of his face, neck, and chest.

Jayden after his second surgery

April 8,2010

Jayden had his second open heart surgery done which is the Bidirectional Glenn this is where the blue blood from the head,neck, and the upper body is directed to the lungs. This reduce the work of the heart. Jayden is still on the vent and lots of medicine but is slowly weaning off of them. Jayden is a little puffy after surgery but should start going down in a few days. Jayden had a spell the night after surgery where his sats drop but that was from where his right lung collasped. The doctors got some of the fluid off of his lung a got his sats back up. He is doing better day by day. Jayden is 2 1/2 months and weigh 8pds 11.5 ounces.

Jayden before his second surgery

On Jan 28,2010 Dr. Gustafson done Jaydens first open heart surgery. It was called the Norwood procedure. In this procedure the right ventricle is used to pump blood into the circulation a shunt is place to pass deoxygenated blood through thr lungs Jayden has a paralyzed left vocal cord do to the surgery. On Feb 18, 2010 Jayden had to have surgert on his stomach. He had to have Nissen Fundoplication this is where they go in a tie his stomach off so he want split his food back upand he also had a G-Tube put in to feed him through it because he can suck a bottle yet do to the paralyed vocal cord. On March 5,2010 Jayden got to come home but was home for 12hrs because his feeding tube was infected so he was readmitted to Ruby Memorial Hospital.

Jaydens Small Heart

On Jan. 21,2010 our familys life changed when are 3rd child was born. It was a boy a we named him Jayden Chase Taylor weighed 7pounds 3ounces at Summersville Regional Medical Center in Summersville, WV where they thought he had a heart murmur. Jayden was transported to Ruby Memorial Hospital where they done a echo on him and diagnosis Jayden with Hypoplastic Left Heart Syndrome. Hypoplastic Left Heart Syndrome is a rare congential heart defest in which the left side is small or underdeveloped. An infant with HLHS will not live long without surgery. They told us from a scale of 1-10 Jaydens heart defect was a 9. Jayden was placed in NICU ontill he was schedule for one of the seriesof open heart surgerys.