Jayden Chase Taylor: Heart Walk 2011

Tuesday, April 19, 2011

Heart Walk 2011

This year we are doing the heart walk in charleston and not bridgeport cause the time for the one in Bridgeport would just be to cold for Jayden. This year we are going to do the walk for Jayden and couple of other kids that live close to us and that we have coming to know with facebook and in person. The first little girl her parents just find out three month ago that she has a large hole in the top to chambers of her heart and will have surgery in June. Her name is

Riley Phares

This little girl her mom has been by my side ever since I find out about Jayden and She has been there with us through his surgery and is still here with us. I cant thank her either for all she has done for us. Barb done the heart walk with us last year and is going to do it this year to.

Alexis

This one is a little boy named Mason Brogan I meet his mom on facebook and he has a pacemaker and has to go every so often and have open heart to get the pacer wires change from where he is growing.

The last one is my little trooper Jayden and I am so proud og him today he has come a long ways. Jayden is pulling his self up, eating by mouth, in to everything. jibber jabbers to everything, loves to go outside, and want let mommy out os his sight. Jayden fontan will be in the fall or this time next year he is under weight right now. But thats ok cause I am not ready to give me baby up I want to spend as much time as I can with him.

Jayden Chase Taylor

Please help us meet are goal or join Team Jayden Chase
http://heartwalk.kintera.org/charlestonwv/teamjaydenchase

1 comment:

Jenna said...: Hi
My name is Jenna and I came across your site. Jayden is special and precious. He is a courageous, strong and determined fighter. He is a brave warrior, smilen champ and an inspirational hero. I was born with a rare life threatening disease, and I love it when people sign my guestbook. www.miraclechamp.webs.com; August 13, 2011 at 11:36 PM

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Jayden Chase Taylor

Jayden Chase Taylor was born on Jan 21,2010 and they thought he had a heart murmur so they had him sent to WVU childrens hospital in Morgantown where they found out he had HLHS. HLHS is hypoplastic left heart syndrome is a rare congential heart defect in which the left side is small or underdeveloped. An infant borning with HLHS will not live without the 3 parts of open heart surgery. The syndrome is one of the top three abnormaities to cause problems in newborns. HLHS occurs slightly more often in boys then girls. Jayden was admitted to the NICU ontill the schedules his series of open heart surgery. Jayden was a wek old when Dr. Gus done his first open heart surgery and it was called the Norwood procedure. In this prodcedure the right venticle is used to pump blood into the circulation. The right ventricle is no longer directly pumping blood to the lungs, a shunt is made directly from the right ventricle to the pulmonary circulation. The narrow aorta is enlarged using patch to improve blood flow to the body. Jayden is a very fragile baby and he has a feeding tube because he has a left paralysis vocal cord and it burns all of heart babys calories to suck a bottle. Jayden had is second series of open heart surgery when he was 2 1/2 months. It called the Bi-Directional Glenn prodecure or Hemi-Fontan. In this operation the superior vena cava is ligated from the heart and connected to the pulmonary circulation. During this time may improve quaility of life as the heart dosen't have to work as hard. The third series of open heart surgery will be around 18 months to 3 years and this one is called the Fontan procedure which completes the repair of HLHS. The surgery goal is to seperate the red and blue blood, have the blue blood enter the lungs directly, have the heart as the pump of oxygen rich blood. The three stage Norwood procedure only increase the life of the heart as HLHS cannot be cured. Jayden may need a heart transplant at some point in his lifetime. After his second surgery Jayden is not a fragile baby. Jayden is a very special baby and he is very strong. He is just amazing for what he has been though. Thanks for all the prayers Mommy, Daddy, Katilynn, and Kaleb Love you Jayden

Tuesday, April 19, 2011

Heart Walk 2011

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