hypoplastic left heart syndrome Pictures, Images and Photos

Tuesday, April 19, 2011

Heart Walk 2011

This year we are doing the heart walk in charleston and not bridgeport cause the time for the one in Bridgeport would just be to cold for Jayden. This year we are going to do the walk for Jayden and couple of other kids that live close to us and that we have coming to know with facebook and in person. The first little girl her parents just find out three month ago that she has a large hole in the top to chambers of her heart and will have surgery in June. Her name is


Riley Phares





This little girl her mom has been by my side ever since I find out about Jayden and She has been there with us through his surgery and is still here with us. I cant thank her either for all she has done for us. Barb done the heart walk with us last year and is going to do it this year to.

Alexis



This one is a little boy named Mason Brogan I meet his mom on facebook and he has a pacemaker and has to go every so often and have open heart to get the pacer wires change from where he is growing.


The last one is my little trooper Jayden and I am so proud og him today he has come a long ways. Jayden is pulling his self up, eating by mouth, in to everything. jibber jabbers to everything, loves to go outside, and want let mommy out os his sight. Jayden fontan will be in the fall or this time next year he is under weight right now. But thats ok cause I am not ready to give me baby up I want to spend as much time as I can with him.

Jayden Chase Taylor





Please help us meet are goal or join Team Jayden Chase
http://heartwalk.kintera.org/charlestonwv/teamjaydenchase

Friday, April 8, 2011

One year

One year ago today I watch my little baby be wheeled to the OR room for his second open heart surgey. One year ago today I watch my baby little heart beat inside of his chest. One year ago today we almost lost my little baby but think to the staff and doctors at Morgantown as they acted quickly of keeping him with us. Jayden u have thrill to be with us today and we have love spending time with u and hope to spend many more. You have learn how to crawl, climb, and also learn to eat by mouth. Your family is so proud of you and is so glad you have come so far. The day we brought you home you could hold your head up or nothing and you show them nurse for Birth to Three that you can do everything that they want you to do. Jayden is eating 4 jars of 4oz jars of baby food a day plus the doctor just put him of Pedisure with fiber cause they said he was under weight. Jayden cardilogist wants to wait ontill he gains weight to do his third surgery and he said probably this fall or this time next year. He is starting to pull hisself up, waving bye bye, saying bye, and he says momom and he also blows kiss.