PRAYING FOR BAYLEIGH

Pray

This post is going to be about a little girl that need EXTRA prays for her and her family her name is Bayleigh. She will be going for her fontan but this will be her 4th open heart surgery and it will be her second one this year so she needs lots of pray. Bayleigh will have her fontan on the thursday the 16th.

This is Bayleigh please pray for her

Jayden

He is doing good and he will be going to morgantown on the 15th for a check up with the surgey to see how thing are going. Jayden is pulling hisself up to sitting and can sit all by hisself. He is very mobile he rolls all over the floor to where ever he wants to go.

Eating

We are still working with Jayden to get him to eat by mouth so far it is going great. He likes mac and cheese , grees beans and banna and yogurt.

We took the kids to see santa and Jayden didnt know what to think of him. He cried when we sit him on his lap but if he was sitting in the floor beside him he was ok. I did get a picture with him on his lap without him crying.

PRAYING FOR BAYLEIGH AND HER FAMILY HOPEFULLY A LAST RECOVER SO SHE CAN BE HOME FOR CHRISTMAS

Sorry it has took me a long to put a blog on here but between moving and getting everything put in the right place have not had no time. Well Jayden like the new home and so does the other two kids. Jayden goes to morgantown and see DR. Gustafson on the dec 15 and he is just going to check his scar and make sure he is doing ok. I took the kids this pasted saturday and let them see santa. Jayden is starting to eat back mouth he likes mac and cheese, bannas and green beans right now but we are trying him with different stuff everyday. He has learned to sit up by hisself and is in a big boy car seat and he loves it cause he can see different stuff. Now that he knows how to sit up he does want to be laid down at all but when he is sleeping. We put are christmas tree up and he roll his way over to it and was playing with the ornaments.

Jayden went to the cardiologist last monday and everything was good. He had a echo done and DR. Phillips said that everything looks good and he just want to leave his medcinie alone for right now. Jayden goes back in march and they are going to check his o2 sats if they are good going to bring him back april or may and do a heart cath. They will decide from there when he will have his Fontan but Dr. Phillips said proably sept or oct. Jayden went today and had his RSV shot and he was not a happy camper cause he was asleep when the nurse came in a gve it to him.

Sorry it has took me so long to blog but we bought a new house and trying to get everything pack up to move in it and I work in the evening. But Jayden is doing great and Katilynn and Kaleb had the stomach virus and he didnt get which I am thankfully for that cause I wouldnt know what to do if he got that where he had a nissen done it would be hard on him. So when they are sick the try to stay away from him ontill the get better. They didnt get to go trick or treat cause they were sick so a bought some candy for them from work. I dont think I want Kaleb to go trick or treating cause he say everything scares him and it is hard for me to get him to go to sleep at night now hopefully it will go away soon. Jayden is starting to eat some baby food but we have to take it slow with him where he hasnt eat by mouth at all ontill now but he is doing go with it.

Happy 9 months

Happy 9 month

Dear Jayden

9 months ago I was not sure if I was going to smile, laugh, and cry. 9 months ago you had your ups and downs and a very scary journey. You have touch alot of people for your amazing journey and you show the nurse and doctor in the hospital who was boss cause you are such a fighter. Thank you so much for being here with your family we love you everyday and so glad to have you with us . You are so amazing for what you have been through.

You have grow up so much and learn so much in the last 4 months that you have been home . Everytime I see you smile or laugh just makes me want to cry happy tears. When you was in the hospital for 4 months I would cry everyday cause I want you home with me. I love watching you play with your brother and sister and how they make you so happy. I love watching you smile at daddy cause he makes you happy. You are our little miracle.

Thank you for making us see how good life can be to us and that miracles do happen. Thank you for all the smiles and laughs. Thank you for fighting so hard to be with us. Thank you for everything that you have done.

9 months ago you change evrything in our lifes. 9 months ago you show us that god is very good to us. 9 months ago you was fighting for your life to be with us. 9 months ago I was pacing the hallaway floor of the hospital worry if you made it and everything was alright.

I wont say the 9 months have been stressful. You mean the world to us and we would not trade you for nothing. The time I have with you now I will love you and enjoying being with you. I know I worry to much but I think all heart mommies worry to cause I will wake up every hour on the hour to make sure you are breathing. I will love always. Mommy, Daddy, Katilynn, and Kaleb are very proud of you just keep up the good work.

This was you 9 months ago

This is you know look how big you are

Jaydens day

Jayden is doing great he went to the doctor and had his ear checked cause he had ear infection about 3 weeks ago. He also got is flu shot and he didnt even cry. Jayden went to the suck and swallow clinic a week ago and the said we had to take things slow with the eat. He likes so baby food but he eats a little at a time which is good. Jayden weighs 19 pounds 19.1 ounces he is gaining two pounds in 2 weeks. Jayden has to go to the cardilogist Oct 25 for a Echo and he has to see the seizure doctor hopefully everything goes good I will so much better when that day is over cause I wont have to worry so much. Well update when that day comes. The heart walk was Oct 2, 2010 and it was a good day Jayden got a award for being on the honorary chair and he got to start the walk out.

Katilynn and Kaleb are doing good in school. This is Kaleb first year in school and he loves it cause he said he has alot of friends to play with. Thank to everyone who donation to american heart association and team jayden chase. Thank to everyone that was walker on team Jayden Chase.

On Oct 8th made 6 month since Jayden had is Glenn and he has been doing very great trying to keep him away from the sick when he goes to the doctor. I make the kids and husband was their hands before the touch him. Wont let no one visit my house if they are sick.I told them if the are sick they cant visit ontill the are better cause I want him to stay from the hospital he was in there for a long time. Jayden has been home for 4 month and we want it to stay that way.

Barb and Jayden

Jayden found this leave and play with it waiting for the walk to start. It is amazing what kid find to play with and too keep there mind off of everything.

This is Jayden award for being on the Honrary Chair you cant see it that good

This is Jayden Grandpa favorite shirt ( DONT MESS WITH ME CAUSE MY GRANDPA KICKS BUTT)

Jayden after havin his flu shot

AHA start heart walk

this is why you should help out

JAYDEN 8 MONTH

Jayden had a doctors appointment today and everything is good except he got three shots. He will be 8 month tomorrow and it is also my birthday. Jayden weighs 18 pounds and 8 ounces and is 28 inches long. He is just growing up to fast on me. He goes sept 30 and has the swallow test done so hopefully he will start o eat by mouth.

Kaleb is in preschool and he loves it. He cry in the morning when he leave the house cause he dont want to leave mommy but he is fine the rest of the day. Katilynn is in first grade and she is doing really good since the teacher put her in front of the class.

The START HEART WALK is next week help me by clicking the start heart walk button at the top of the page and donation for a good cause. Jayden is in a video and on a billboard for the Harrison County Start Heart Walk.