Happy 9 months

Happy 9 month

Dear Jayden

9 months ago I was not sure if I was going to smile, laugh, and cry. 9 months ago you had your ups and downs and a very scary journey. You have touch alot of people for your amazing journey and you show the nurse and doctor in the hospital who was boss cause you are such a fighter. Thank you so much for being here with your family we love you everyday and so glad to have you with us . You are so amazing for what you have been through.

You have grow up so much and learn so much in the last 4 months that you have been home . Everytime I see you smile or laugh just makes me want to cry happy tears. When you was in the hospital for 4 months I would cry everyday cause I want you home with me. I love watching you play with your brother and sister and how they make you so happy. I love watching you smile at daddy cause he makes you happy. You are our little miracle.

Thank you for making us see how good life can be to us and that miracles do happen. Thank you for all the smiles and laughs. Thank you for fighting so hard to be with us. Thank you for everything that you have done.

9 months ago you change evrything in our lifes. 9 months ago you show us that god is very good to us. 9 months ago you was fighting for your life to be with us. 9 months ago I was pacing the hallaway floor of the hospital worry if you made it and everything was alright.

I wont say the 9 months have been stressful. You mean the world to us and we would not trade you for nothing. The time I have with you now I will love you and enjoying being with you. I know I worry to much but I think all heart mommies worry to cause I will wake up every hour on the hour to make sure you are breathing. I will love always. Mommy, Daddy, Katilynn, and Kaleb are very proud of you just keep up the good work.

This was you 9 months ago

This is you know look how big you are

Jaydens day

Jayden is doing great he went to the doctor and had his ear checked cause he had ear infection about 3 weeks ago. He also got is flu shot and he didnt even cry. Jayden went to the suck and swallow clinic a week ago and the said we had to take things slow with the eat. He likes so baby food but he eats a little at a time which is good. Jayden weighs 19 pounds 19.1 ounces he is gaining two pounds in 2 weeks. Jayden has to go to the cardilogist Oct 25 for a Echo and he has to see the seizure doctor hopefully everything goes good I will so much better when that day is over cause I wont have to worry so much. Well update when that day comes. The heart walk was Oct 2, 2010 and it was a good day Jayden got a award for being on the honorary chair and he got to start the walk out.

Katilynn and Kaleb are doing good in school. This is Kaleb first year in school and he loves it cause he said he has alot of friends to play with. Thank to everyone who donation to american heart association and team jayden chase. Thank to everyone that was walker on team Jayden Chase.

On Oct 8th made 6 month since Jayden had is Glenn and he has been doing very great trying to keep him away from the sick when he goes to the doctor. I make the kids and husband was their hands before the touch him. Wont let no one visit my house if they are sick.I told them if the are sick they cant visit ontill the are better cause I want him to stay from the hospital he was in there for a long time. Jayden has been home for 4 month and we want it to stay that way.

Barb and Jayden

Jayden found this leave and play with it waiting for the walk to start. It is amazing what kid find to play with and too keep there mind off of everything.

This is Jayden award for being on the Honrary Chair you cant see it that good

This is Jayden Grandpa favorite shirt ( DONT MESS WITH ME CAUSE MY GRANDPA KICKS BUTT)

Jayden after havin his flu shot

AHA start heart walk

this is why you should help out

JAYDEN 8 MONTH

Jayden had a doctors appointment today and everything is good except he got three shots. He will be 8 month tomorrow and it is also my birthday. Jayden weighs 18 pounds and 8 ounces and is 28 inches long. He is just growing up to fast on me. He goes sept 30 and has the swallow test done so hopefully he will start o eat by mouth.

Kaleb is in preschool and he loves it. He cry in the morning when he leave the house cause he dont want to leave mommy but he is fine the rest of the day. Katilynn is in first grade and she is doing really good since the teacher put her in front of the class.

The START HEART WALK is next week help me by clicking the start heart walk button at the top of the page and donation for a good cause. Jayden is in a video and on a billboard for the Harrison County Start Heart Walk.

Well Jayden is doing great. We went to bridgeport two weeks ago for Jayden to be put on tv for Harrison County Heart Walk. Had a family reunion yesterday and it was cold so my family from out of state got to see Jayden for the first time but they were just a little stick up about it. Kaleb started preschool and he loves it. Jayden has a swallow test schedule for Sept 30 so hope everything goes go and we can start to work with him to suck a bottle and eat baby food. He is starting to talk more and more everyday and he is in 3-6 months clothes now and size 1 in shoes he is getting there. Jayden just love to take thing a make noise with them he thinks it is so funny. I get all the walkers for the heart walk in october I got more than my goal. Jayden is scheduled to see the cardiologist on Oct 25 and he will have a echo done that day to.

Kaleb

this is jaydens newest cousin kayla paige




Katilynn with her new hair cut

"Every Heart Has a Story"

On Jan 21, 2010 I had to be at the hospital at 5:00 in the morning for a schedule c-section. We didnt know that are baby had a heart defect. At 7:38 am Jayden Chase Taylor was born weighing 7pounds 3 ounces and 18 inches long. The OB nurse took him so the doctor could do his exam on him. They come in my room when I got back from the OR and told me that they thought Jayden had a heart murmur. So they called WVU childrens Hospital to see if they can transported him to get a better idea. Jayden was 8 hours old when the NICU/PICU team come and got him.


first time seen Jayden


Around 10 pm that night the told my husband that he has the one of worst heart defect there is Hypoplastic Left Heart Syndrome. He was a number 9 with hs heart defect and they gave us two choice to let him die or to go with the 3 open heart surgery. We said the series of 3 open heart surgery cause we couldnt live without are baby boy. I was still in Summersville, WV in the hospital when they find out and Jayden and my husband was in morgantown WVU childrens hospital.



first time i got to hold him

On Jan 28, 2010 Jayden had the Norwood done. Feb 18, 2010 Jayden had a Nissen and a G-tube because he had to much acid reflux and he couldnt keep his food down. He had his up and down for there ontill he went him.



couple weeks after norwood and two days before nissen/g-tube

On March 5, 2010 Jayden got to come home for the first time he came home on oxygen but was home only 12 hours and had to go back because his feeding tube was infected. The notice that the infected was from the g-tube he had in so the change it and it clear up. Jayden was suppose to come home on March 22,2010 but he had a set back and had to go back on the vent. He starting crying and just wouldnt quit crying and finally when they got him to stop crying he couldnt breath very good and they thought it was a seizure.



On April 8, 2010 he had his glenn done . His sats, blood pressure and everything else was fine when he came up and he also came up on room air. But as the day went by everything was not looking good. That night Jayden sats drop done to about 5 so they put the vent in him and they started to come back up so they done a x-ray on him. They found out that his right lung had collaspe from to much fluid around it.


day after Glenn

On June 3, 2010 Jayden got to come home and has been home since then and I am doing everything to keep him out of the hospital. Around August 2011 we are looking forward to have his fontan done. Jayden has been home 2 month and gain 2 pounds in the two month is doing great now that my two kids are in school we are going to be very careful that he doesnt get sick. He also came home on 1/2 L oxygen but has been weaned seens then. Jayden doesnt have his oxygen on during the day but has to wear it at night cause they said that it keeps the blood flowing.

Jayden at home having fun

Jayden seen the Dr. Tomsho ped. and he was please of howJayden was gaining weigh. He is 17 pounds 1 ounces and is 25 inches long , sats where 82. He doesnt want to see Jayden ontill 4 weeks for his 6 month shots yay that day is going to be fun. Well not much to say right now just loving my baby for doing so great. Here is a couple of picture that we got taking