Jayden went to the cardiologist last monday and everything was good. He had a echo done and DR. Phillips said that everything looks good and he just want to leave his medcinie alone for right now. Jayden goes back in march and they are going to check his o2 sats if they are good going to bring him back april or may and do a heart cath. They will decide from there when he will have his Fontan but Dr. Phillips said proably sept or oct. Jayden went today and had his RSV shot and he was not a happy camper cause he was asleep when the nurse came in a gve it to him.
Sorry it has took me so long to blog but we bought a new house and trying to get everything pack up to move in it and I work in the evening. But Jayden is doing great and Katilynn and Kaleb had the stomach virus and he didnt get which I am thankfully for that cause I wouldnt know what to do if he got that where he had a nissen done it would be hard on him. So when they are sick the try to stay away from him ontill the get better. They didnt get to go trick or treat cause they were sick so a bought some candy for them from work. I dont think I want Kaleb to go trick or treating cause he say everything scares him and it is hard for me to get him to go to sleep at night now hopefully it will go away soon. Jayden is starting to eat some baby food but we have to take it slow with him where he hasnt eat by mouth at all ontill now but he is doing go with it.
A Special Baby Boy journey with HLHS
Team Jayden Chase
Jayden Chase Taylor
Jayden Chase Taylor was born on Jan 21,2010 and they thought he had a heart murmur so they had him sent to WVU childrens hospital in Morgantown where they found out he had HLHS. HLHS is hypoplastic left heart syndrome is a rare congential heart defect in which the left side is small or underdeveloped. An infant borning with HLHS will not live without the 3 parts of open heart surgery. The syndrome is one of the top three abnormaities to cause problems in newborns. HLHS occurs slightly more often in boys then girls. Jayden was admitted to the NICU ontill the schedules his series of open heart surgery. Jayden was a wek old when Dr. Gus done his first open heart surgery and it was called the Norwood procedure. In this prodcedure the right venticle is used to pump blood into the circulation. The right ventricle is no longer directly pumping blood to the lungs, a shunt is made directly from the right ventricle to the pulmonary circulation. The narrow aorta is enlarged using patch to improve blood flow to the body. Jayden is a very fragile baby and he has a feeding tube because he has a left paralysis vocal cord and it burns all of heart babys calories to suck a bottle. Jayden had is second series of open heart surgery when he was 2 1/2 months. It called the Bi-Directional Glenn prodecure or Hemi-Fontan. In this operation the superior vena cava is ligated from the heart and connected to the pulmonary circulation. During this time may improve quaility of life as the heart dosen't have to work as hard. The third series of open heart surgery will be around 18 months to 3 years and this one is called the Fontan procedure which completes the repair of HLHS. The surgery goal is to seperate the red and blue blood, have the blue blood enter the lungs directly, have the heart as the pump of oxygen rich blood. The three stage Norwood procedure only increase the life of the heart as HLHS cannot be cured. Jayden may need a heart transplant at some point in his lifetime. After his second surgery Jayden is not a fragile baby. Jayden is a very special baby and he is very strong. He is just amazing for what he has been though. Thanks for all the prayers Mommy, Daddy, Katilynn, and Kaleb Love you Jayden
