June 24,2010

It has been a long time but just been busy with all the medicine and doctor appointments. Jayden got to come home on thursday june 3 and not that tuesday because he had billirubin and it was high so had to wait for that to go do some. He has to have lab work done 3 times a week to make sure that it stays down. Jayden weighs 14pds 5ounces now and his billirubin is down. He seen the cardiology and neurology on June 14 and Dr Gus come and look at him to and made sure everything was alright. He was a little fussy that day. Jayden is doing really good and he loves to go for walks outside but i would like to if i was in a hospital for 4 month i would like to be outside too. We are so glad for him to be home and not in that hospital. Jayden has to go back to the cardiology on July 7 and he has to see the GI doctor that day too so that is going to be fun cause jayden doesnt like anyone touching him. With all the medicine schedule , feeds and going to the doctor appointments and all the nurse coming in i feel like i have no time for other two kids so when Jayden goes to sleep I try to do stuff with them and clean house and it is hard because my husband work and does get home ontill 6 sometime 7 clock. Everyone say I dont see how u do it but it is just something u have to face and do. Thanks for all of the prayers and about around 18 months Jayden will have to his last surgery. So hope he stay out of the hospital ontill then.